This is a time of significant uncertainty.

A group of paediatricians an allied health professionals has collected some useful resources around COVID-19 for you and your children.

Please visit Paediatrics.Online to read more.

The SuCCEED Tube Feeding Picnic is a time to come together as a community of people touched by tube feeding a child – family, friends, clinicians and researchers.

This year the picnic has been postponed due to COVID-19, but that’s no reason to feel alone. We are all in this together.

Watch and share this video with your family and friends. See our amazing families here playing, laughing, getting on with their days and bringing the joy back to mealtimes, no matter how they choose to feed.

Learn more at www.childfeeding.org/news

We are very sorry to announce that the Tube Feeding Picnic 2020 has been POSTPONED due to COVID-19. It would not be safe or fun to bring everyone together and share a meal at this time.

We will DEFINITELY re-schedule! You can sign up for updates via our newsletter here.

Join us ONLINE instead!

Instead of meeting in person, we’d love to release a video of everyone bringing the joy back to mealtimes that we can all can watch at home on March 22nd.

Please send us a short video, photo or your best tip for joyous family mealtimes with a tube-fed child and if we receive enough we’ll make a fun, inspiring video to share on the day.

You can EMAIL us photos and tips, or UPLOAD videos securely to our Dropbox (no login required).

You can be anonymous or acknowledged by name (or nickname) at the end of the video.

Please thank our amazing volunteers

We had some great entertainment volunteering at the picnic and not only have some spent money booking transport and accommodation, they have also given up the chance to earn an income at smaller events.

Please take a second to send some love and thanks to these amazing people:

Watch highlights from our FIRST picnic in 2019!

ChildFeeding.org has been produced by the families, clinicians and researchers of the Supporting Children with Complex Feeding Difficulties (SuCCEED) Study.

Our vision is a world where children with feeding difficulties thrive.

Our mission is to help families celebrate and embrace mealtimes, however they choose to feed.

As the only evidence-based online resource by parents, for families of kids with complex feeding difficulties in Australia, this is the table where everyone is welcome.

The SuCCEED Study and ChildFeeding.org are working for change, so that every family knows the simple joy of sharing a meal, and every child thrives.

Choose any of our topics from the menu, or to jump right in click the button below!

 Resources

We did it!

Thank you to every one of the approximately 100 people who turned up to our first ever picnic. The sun was shining, music played and we came together as a community around the incredible children and families who are at the heart of the SuCCEED Study.

Channel 7 News even did a story on the SuCCEED Study, including footage from the picnic and starring the incredible Bernard family. Click here to watch the extended online version and please share it widely!

A huge and special thank you to all our volunteer clinicians, entertainers, and photographers for making this such a special day. We could not have done this without you.

This picnic was another important step towards improving the lives of children with complex feeding difficulties. If you would like to give us feedback on the day, share your story, help us with our research or apply to join the research team please click here to contact us.

If you had professional photos with Kat Cvet please give her a few weeks to send out the link to them. We will update childfeeding.org with video and photos from the picnic once we have edited them all.

The message from the picnic was “you are not alone”. We look forward to walking the next steps, together.

the SuCCEED Study team

These were our picnic details. See you next year!

The FIRST EVER SuCCEED Tube Feeding Picnic 2019 was held at Hill Pavilion, Sydney Olympic Park on Sunday 31st March 2019 from 10am – 2pm.

There was child and tube-friendly entertainment generously donated by some wonderful performers:

Come join us in 2020 – details here!

Welcome to our Tips and Tricks Resource

You can scroll down to read the whole page, or click on the links below to skip directly to that section.

Read More

For families just starting out…

Read More

Watch our brand new trailer!

Watch our brand new trailer! We have Australian-first videos about tube feeding launching in mid-2019.

Visit our News page to stay up to date, or read the full Real Stories here

“What’s in My Bag”?

Watch Irene as she talks through what she takes out in order to tube feed her son, Connor.

Visit our “Tips and Tricks” page for more information like this, or go back to the home page.

Read More

The Supporting Children with Complex Feeding Difficulties (SuCCEED) study group have been hard at work over the Summer.

We’re delighted to report that preliminary data collection for two of our four study goals is now complete:

1. Tube Education

Nine amazing families have been interviewed for our tube education element.  Under the supervision of A/Prof Nick Hopwood from the University of Technology Sydney, we’re having the interviews transcribed and then we will start working to make an education package right here on childfeeding.org that matches what these families asked for.

Once we’ve made the package, we’ll be inviting families to review and comment on it to make sure it’s exactly right.

2. Brilliant Care in Feeding Clinics

The incredible staff and patients of Liverpool Hospital, Sydney, have finished the main data collection during clinic time.  Under the supervision of Senior Lecturer Ann Dadich from Western Sydney University they are now finalising the reflexive feedback, which will help us start to understand what makes brilliant care in tertiary feeding clinics.

Other News

The remaining two elements of SuCCEED – identifying models of care and piloting measures of distress in parents and carers – are well underway and on track to be in their final stages by July 2018.

We have the first meeting of our Parent Advisory Group coming up in April, which the study group are very excited about.

Finally, we are in the very early planning stages for Year 2 of SuCCEED.  We will be applying for funds to launch a huge new initiative, based on early research findings from our focus groups.  Stay tuned for more SuCCEED news here!

– Dr Chris Elliot, Paediatrician and Chief Investigator SuCCEED Study

 

Tony’s Story

Tony’s Story

Hannah tells the story of her son Tony, and their family.

Visit our Tips and Tricks page for more tips from Hannah, or hear more Real Stories here.

The SuCCEED Study is grounded in the idea that we want to take better care of children with feeding difficulties, and their families.

We’re not just full of good intentions though.  As with all research projects in Australia and internationally, the SuCCEED team is required to submit a detailed research plan for rigorous external, independent evaluation by an accredited Human Research Ethics Committee.

Our research proposal was reviewed by the Sydney Children’s Hospitals Network Human Research Ethics Committee, and assigned the unique identifing number LNR/17/SCHN/340.  We’re delighted to announce today that the study proposal has been given full approval to commence.  This is a significant milestone for the SuCCEED Study, and paves the way for our research to begin.

Please keep visiting ChildFeeding.org for further updates.

Dr Chris Elliot

Chief Investigator, SuCCEED Study