Welcome to our News page, where we post updates on the progress of our study.
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8th Feb 2019 SuCCEED Video Trailer
This is the first look at our upcoming video content. We’ve filmed three incredible parents, seven actors telling the real stories of real families, and we’ll be putting it all up on http://www.childfeeding.org within the next few months. Please watch and share widely!
5th February 2019
We are excited to announce that thanks to a charitable donation we will be hosting the first ever Tube Feeding Picnic in Sydney, Australia on March 31st 2019!
Please visit our Picnic page for more details. We hope to see you there!
5th July 2018
We’re fast approaching the end of the first year of the Supporting Children with Complex Feeding Difficulties (SuCCEED) study. The SuCCEED team have worked hard to develop this first draft of ChildFeeding.org and we’e excited to continue working on the project.
Twelve months ago we received seed funding for only 1 year, with the intention that we would apply for further funding grants while working on the project. As a team we have applied for 5 grants in the past 12 months, and we’re delighted to announce that of the three that have been announced so far (two decisions are pending), the SuCCEED group has been awarded two!
Thank you to the Early Life Determinants of Health (ELDoH) Clinical Academic Group from the Sydney Partnership for Health Education Research and Enterprise (SPHERE) for a 12-month grant of $20,000. This grant will go towards better understanding how we care for children with feeding difficulties in NSW, Australia and where we can make changes.
Thank you also to South East Sydney Local Health District who have awarded $20,000 for 12 months to expand ChildFeeding.org in Nepali. This grant gives us the opportunity to work with Nepalese families in Sydney, Australia, to understand their experiences, knowledge, and resource needs around child feeding and to create a Nepalese-language section on ChildFeeding.org.
Finally, our work with ChildFeeding.org is not finished. We are now into our second round of feedback from families of children with complex feeding difficulties and we will be making changes to the site in response to that feedback. Please visit again to see what has changed! If you have any ideas or feedback yourself, please feel free to contact us.
– Dr Chris Elliot, Paediatrician and Chief Investigator SuCCEED Study
23rd March 2018
The Supporting Children with Complex Feeding Difficulties (SuCCEED) study group have been hard at work over the summer.
We’re delighted to report that preliminary data collection for two of our four study goals is now complete:
1. Tube Education
Nine amazing families have been interviewed for our tube education element. Under the supervision of A/Prof Nick Hopwood from the University of Technology Sydney, we’re having the interviews transcribed and then we will start working to make an education package right here on childfeeding.org that matches what these families asked for.
Once we’ve made the package, we’ll be inviting families to review and comment on it to make sure it’s exactly right.
2. Brilliant Care in Feeding Clinics
The incredible staff and patients of Liverpool Hospital, Sydney, have finished the main data collection during clinic time. Under the supervision of Senior Lecturer Ann Dadich from Western Sydney University they are now finalising the reflexive feedback, which will help us start to understand what makes brilliant care in tertiary feeding clinics.
The remaining two elements of SuCCEED – identifying models of care and piloting measures of distress in parents and carers – are well underway and on track to be in their final stages by July 2018.
We have the first meeting of our Parent Advisory Group coming up in April, which the study group are very excited about.
Finally, we are in the very early planning stages for Year 2 of SuCCEED. We will be applying for funds to launch a huge new initiative, based on early research findings from our focus groups. Stay tuned for more SuCCEED news here!
– Dr Chris Elliot, Paediatrician and Chief Investigator SuCCEED Study
10th October 2017
The SuCCEED Study is grounded in the idea that we want to take better care of children with feeding difficulties, and their families.
We’re not just full of good intentions though. As with all research projects in Australia and internationally, the SuCCEED team is required to submit a detailed research plan for rigorous external, independent evaluation by an accredited Human Research Ethics Committee.
Our research proposal was reviewed by the Sydney Children’s Hospitals Network Human Research Ethics Committee, and assigned the unique identifing number LNR/17/SCHN/340. We’re delighted to announce today that the study proposal has been given full approval to commence. This is a significant milestone for the SuCCEED Study, and paves the way for our research to begin.
Please keep visiting ChildFeeding.org for further updates.
Dr Chris Elliot
Chief Investigator, SuCCEED Study
9th September 2017
Feeding difficulties in children are really common – some studies estimate that 1 in 2 to 1 in 3 parents worry about their child’s feeding at some stage. For some families their child’s feeding goes far beyond worrying – their children need specialist therapy, medical support or even feeding tubes to stay safe.
Research into feeding difficulties in children is not common. Despite lots of hard work in Australia and around the world to try and help children with feeding difficulties we still don’t know as much as we would like about looking after these children. More importantly, we don’t know much at all about what parents, carers and children themselves want from their healthcare services.
The Supporting Children with Complex Feeding Difficulties (SuCCEED) Study in Sydney, Australia, is attempting to answer the question “what makes great care for children with feeding difficulties and their families?” This is a really big question, so we’ve broken it down into four parts:
- What are we currently doing in our Feeding Clinics and how should we measure the quality of care that we provide?
- How common is stress and distress in parents and carers of children with feeding difficulties?
- What do parents / carers and clinicians think brilliant care looks like?
- What do parents and carers want to know about feeding difficulties? We’re starting with those with the highest support needs; family of children who need feeding tubes.
In 2017/18 we are starting small, to make sure we are using the right methods and collecting the right data to answer these questions the right way. If we’re successful, we hope to expand the kinds of questions we ask, and where we ask them.
We invite you to follow along our progress through ChildFeeding.org. Thank you for your interest and support!
– Dr Chris Elliot, Paediatrician and Chief Investigator for the SuCCEED Study.